Post craniotomy healing / normal recovery

I noticed I have been adding a lot of stories about my day to day happenings since surgery and thought I would just give you a list of what I am figuring as normal healing post Craniotomy surgery.

Just after surgery: I only remember 10 days post surgery because of the steroid induced psychosis. When I got home from the hospital.

Tightness in the skull: from the plates and screws holding the bone flap. It feels very tight like your skull is ridged instead of fluid feeling. (hard to explain but it almost feels like your skull and skin should have movement but does not)

Pain: The pain in manageable with the pain Meds I was down to 1/2 tablet every 4-6 hours. Helpful hint is a very soft pillow for the head. Sleep on your back with the head elevated with pillows or have blankets put either under you mattress to elevate the whole bed or under your billows to make a prop that is not easily moved.

Fatigue: You feel drained like you have been up for days fatigue. I found that every 3-4 hours I would get this fatigue and then sleep for a few hours. It is like your internal body clock is rest and every 3-4 hours is being awake for a whole day. I could fall asleep just about anywhere. You want to just lay flat. It helps with the headaches as well.

Headaches: these are similar to the low CSF type headaches laying flat really helped me relieve the pain. They would go from 0-6 on the pain scale.

Numbness: from where the skin was lifted from the skull. You can’t really feel where you are touching or scratching.

Stitches: Just like with any healing wound would will have itchiness. I found rubbing the hair that is growing a relief just did not push down to where I was touching the incision. Ask your Dr. If you should be using an ointment on you incision to keep it from drying out. I found out from the surgeon 20 days post surgery I should have been putting ointment on the incision to keep it from drying up.

Plates and screws: mild to moderate shooting type pains where the screws and plates meet the skin. They come and go quickly.

Head pin sores: After they put you to sleep for the craniotomy your head is placed in to a holder that usually has 3 pins they are like a sharp screw that holds your head still during surgery. I had one about 3 inches above my left ear, one just behind my ear and one on my right forehead just above the outside edge of the eye brow. They are basically like a small round stab wound. The area of bone and skin will have small scabs that will twinge with pain then itch and then the scab will fall off. You will be able to feel the indents in the bone until the bone fills in. No really too painful just kinda there.

Large dandruff flakes: for the first mont I had the worst dandruff. It is actually your skin rejuvenating from the trauma of having the skin peeled from the bone, and from not being able to scrub your head when showering or brushing your hair. Ask the Dr BEFORE you use any dandruff type shampoo.

Nausea: it is normal to feel queasy after they do brain surgery. They give you Meds for this. Should go away about 2 weeks post surgery.

Constipation: take your stool softeners folks. The drugs that they give you during surgery are hefty drugs and they will stop you like the hover dam. Any straining and your head feels like it will explode. Same with coughing and sneezing, just try not to cough or sneeze.

Memory / brain function: this will be different for everyone. I have what I have started calling brain farts. They are actual brain pauses. I have trouble with finding the right word when having a conversation. I will be mid sentence and will not for the life of me be able to pull the right word. Example I wanted the word fireworks I could see the actual fireworks In my thought but substituted the word bomb because i could not come up with fireworks.

1month post surgery

Pain: surgical pain should be just about be gone. Should is the key word hear. As long as you are using ointment on the incision, resting, and have no infections they incision should be on the mend.

Numbness: still there, nerves should be starting to heal. You will feel these as quick shooting type pains they come quick and leave quickly.more of a nuisance than actually something to worry about.

Headaches: they are still there just not as intense as they were last month. Laying down does make the go away.

Fatigue: you should feel like you have a little bit more energy. Just don’t over do it. Naps are still your best friend

Incision: you should be healing up great by now. I found that I was always touching it and the short hair around it. FYI if you rub the incision you will cause yourself unneeded pain. Those nerves are just firing away every time you touch it.

2nd month post craniotomy

Plates and screws: your skin should now be back to normal over the plates. You will actually be able to feel the plates and screws. Just remember that your nerves are still growing back so their might be pain when you play with them.

Memory brain function: still having the issue with finding the right words and replacing them with similar words. Also I just pause, find the right word then continue with the conversation. Example I needed skier, in my head I saw the skier going down the hill and had to go through a complete explanation to the person I was talking to saying “you know the guy going down the hill, snow, poles, things on his feet” they gave me the word and I kept going on with the conversation. Frustrating and not very entertaining.

Headaches: deep twinges inside the head. I assume that since my CT scan is clear that this is just my. Rain healing from the surgeons lifting up the brain. More nerves type thing.

Numbness: still there

Itchy scalp: when the nerves are firing off trying to heal themselves it is on the crown of the scalp. Doc said this could take a while to go away.

I am going on my 3rd full month post surgery on the 31st of the month. I have almost my full energy back. The headaches come and go. Mostly I forget I have had the surgery until about 3 pm everyday then the headaches come (these headaches might be from a small continued CSF leak that we are currently investigating. I will be updating the blog after we figure this out)

So I hope in the future that these notes can help someone else out. After a craniotomy you tend to think every little pain is a major concern (at least I do sometimes) your surgeon will give you instructions about when to call them with a concern.

Right now my post surgical instructions are if I get a really bad headache and a stiff neck is to call them and then go to the ER. So for now I am just dealing with the small stuff.

Good luck with your journey. God Bless.

About Just Jules

USCG Vet, wife, daughter, recently blimded in one eye from brain surgery, using my passion for food as my rehab.
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186 Responses to Post craniotomy healing / normal recovery

  1. Bobbi says:

    I’m 7 weeks out from a bi-frontal craniotomy to remove a tumor that was pressing on my frontal lobes & I was told you to have the surgery or lose my life.
    Mine was done temple to temple..& my recovery has been slow! I have had PT, OT, And nursing All at home which is been great. I still have a lot of headaches fatigue nausea

    I still have quite a few headaches, Fatigue is absolutely still there

    • Just Jules says:

      Hang in there. It does get better, it just takes time. Some more then others. Rest and the headaches will get better. If the are getting worse or concerning contact your doctor.

      Our brains get ticked off when someone has put their fingers where they done belong. And believe me when I say the brain has its own agenda when it comes to healing. Take your time and you will get better.

      • Anonymous says:

        Thank you so much for your blog! I am a week out of surgery. And with your blog I feel I understand more of whats happening! Jb

      • Just Jules says:

        Welcome to the club. It does get better. Hope you start feeling better soon. Remember sleep and rest are you friends right now! The rest of the world can wait a few weeks.

  2. Bobbi says:

    Sorry, Started repeating I need to get some sleep will finish later….

  3. Lulu says:

    Thank you for these notes. I’m at about 7 days post surgery and can manage to type! I’m definitely having trouble with finding the right words, last night I was looking for “Maid” and couldn’t figure it out. Weirdness. Best of luck with your continued healing. It’s a long process and I’ve a long ways to go before I get back to what was normal for me last year. :)

    • Just Jules says:

      Lulu – yes you are at the beginning, and trying to find word you know how to spell, can be very frustrating. I still have those days when nothing comes out right. Make sure you rest as much as you can. It really does help. Take care of yourself.

  4. Betsy says:

    My 10 year old son had encepholocele craniotomy 9 days ago. Scary stuff. He is sleeping a lot and barely eating. Drinking some and has intermittent severe headaches. Blogs help more then talking to drs.

    • Just Jules says:

      Sending prayers your way. Kids bounce back quickly from these things. Sleep is his friend right now. My body clock would rest every few hours.

      Just don’t let him over due too much until he is cleared by the doc’s.

    • Just Jules says:

      The barely eating might be because he can taste much if the damaged his olfactory nerves. I had the same issue.

  5. Anonymous says:

    I’m post two craniotomy surgery August 12, 2013 & September 12, 2013, I still get lots of headaches and my balance is off at times. I’ve also developed this really bad case of dry, itching, dandruff scalp…very frustrating case didn’t have this problem before

  6. Cora Davis says:

    I’m post two craniotomy surgery August 12, 2013 & September 12, 2013, I still get lots of headaches and my balance is off at times. I’ve also developed this really bad case of dry, itching, dandruff scalp…very frustrating case didn’t have this problem before

    • Just Jules says:

      Welcome, sorry you are having issues. Talk to the doc about the scalp. They might prescribe something for that.

      • Patricia A. Retherford says:

        Read on another site that the “dandruff scalp” I had two patches of cradle cap looking and feeling places. It’s the skin healing after being lifted from the skull – anyway, my hair dresser recommend then gave me a cup of something to put on after 2 or 3 x’s a day and it’s clearing up. Tea Tree Oil will work too. Ask a hairdresser.

  7. Julie Grant says:

    I had a temporol lobe lobectomy done on the 12th december last year and omg i had a csf leak then i was sick for seven weeks due to gastric problems but my head and scar have never been sore even when it was first done i was amazed at that i still am really week when i stand for any length of time still of work i am able to do housework and cook so i guess its a start it has completely zapped my energy big time on the other hand i was having trouble sleeping but after a week on sleeping tablets all is good just waiting on my hair growing in has i have long hair i will be waiting a while i hope to get back to work sometime

    • Christina says:

      Good Luck Julie. I had my brain surgery in oct.11 2012.. I am still waiting for my hair to grow back. Now I look like a punk rocker… I had it done on the frontal part of my brain…no offence to punk rockers!!! I have long hair too….I hope you feel better!

  8. Christina says:

    hi I just got one question… I had a cavernous malformation in the frontal lobe of my brain in October 11.2012. Now, I feel around and my forehead feels different. Is this normal? I had a scan of my brain..everything is fine. I havent went back to the doctor. Is it like a old house…it just settles a little?

    • Christina says:

      sorry I got the year mixed up 2013

    • Just Jules says:

      I think you pegged it with the settling in. I am going on almost 2 years and yes my forehead feels weird.

      • irishmom0563 says:

        🎇Thank you so much! I do pray for everyone going through these tough times. I know its not easy! I hope very is getting better! And thank you all for you insight and experiences … the doctor doesn’t tell you much after the surgery. I really don’t know what to expect. Thank you all for all your help…🎇

  9. Melissa Collins says:

    I had a craniotomy Jan. 3rd 2014 after discovering a small tumor on my right side behind my ear. Turns out it was a GBM but they managed to get it out and I’m on both radiation and chemo (day 20 today!) Healing has been well but I occasionally leak from my incision since my bone flap wasn’t put back in. Lol So I have this funny soft spot that’s currently filled with CSF , gross huh? I spring random small leaks lol Good to see I’m not the only one getting brain Farts! Lol I also forget where I put stuff easily haha the fatigue is still there especially with treatments hahao guess I’m thankful bdont really get any headaches but boy is my scalp sensitive! Especially the area around where I was stitched up. I have lost ny hair due to treatments so it’s even more irritating to have that plus sensitivity haha I’m only bald on my right side too.

    • Just Jules says:

      At least you have the right attitude. You have been through the wringer. We will just call you leaky (joking) I hope they get you skull back on soon. It will make your life a lot easier.

  10. michael says:

    I don’t want to be rude or lack compassion as everyones surgery is different and craneoplasty’s are a huge thing.. But I just found this a bit exaggerated. I don’t know if it was a larger skull area or a different type of craneo than what I had, but I felt virtually none of this. I felt in pain and nauseous for the first TWO days, then I felt fine. I’m a week out now and still have the staples in, I feel no pain or headaches except i do feel a little sick – very manageable though.

    • Just Jules says:

      Sorry you feel that my surgery and complications are over exaggerated. Like I aside everyone is different. Glad that you are doing so well and have no issues.

      Unfortunately this is my true story. If you read it you would understand what I have been through.

      • michael says:

        yeah i know, sorry if it sounded harsh. It’s just that I read this before my craneoplasty and was really nervous and scared. Seeing as this post comes up quite a lot when you search for recovery after craneoplasty, maybe it’s an idea to include something saying that some people are fine after it. With dealing with brain injury and a major surgery it’s not nice to get the added nervousness from this post.

  11. Anonymous says:

    Thanks for the blog really has helped more than you will ever know! The pain is the worst cant describe but I know it will go. Thanks again Blessings to you!

  12. lucky girl says:

    I had 4 brain surgeries in oct 2012 and my head where my temple is on the left side is still numb… anyone else have this

  13. irishmom0563 says:

    🎇Thank you so much! I do pray for everyone going through these tough times. I know its not easy! I hope very is getting better! And thank you all for you insight and experiences … the doctor doesn’t tell you much after the surgery. I really don’t know what to expect. Thank you all for all your help…🎇

    • irishmom0563 says:

      I hope everyone is getting better…I just fix my typo

    • Just Jules says:

      Irish Mom you are welcome and thank you for your prayers for all of us. We all have been through something we should never have to go through. Yes doc’s never tell us what to expect because unless they have been thought it they do no understand.

      Thanks for stopping by, feel free to ask any questions if I have not been through it I am sure someone else will be along to answer your questions.

      God bless and hope you are feeling better.

  14. Julie Grant says:

    I had a temporol lobe lobectomy done in december last year i did have a small csf leak which stopped after five minutes so i had to endure the pain of getting a lumbar drain fitted and low pressure headaches they were so sore and i was sick for seven weeks after it i cldnt eat a thing but nearly four months on things couldnt be better plus my hair is growing slowly still not back at work and need a rest if i stand for too long but its getting better i can walk a good bit

    • Just Jules says:

      Thanks for your update. I know your pain regarding the low pressure headaches, they are the worst!

      • Julie Grant says:

        As of today i am eating normally the bowels move hahaha the head is itchy in the inside so i think thats it healing up i am walking normal pace and length the only problem being i cant stand up long i get tired quick am ok if i keep on the move as for my massive scar its fadin everyday thanks to bio-oil its a big c shape that goes from my head all the way round and past my ear its huge takes up all the side of my head the best bit is i have had no seizures since november and that was the whole idea of this surgery should done it years agi

  15. Bobbie says:

    I just had a middle fossa crainotomy to my left side. I have psedu tumor cerbri and a CSF leak. The doctors found a whole in my skull and dura. I ended up having some of my brain come out and was behind my ear. The doctor fixed the whole in my skull, dura and had to cut off the bad part of the brain. I also had a shunt put in at the end of Jan to help with any pressure.

    I have a tremor and weekness on my right side and a lot of pain where they cut me open. I also have some speach issues. Went to the ER last night and had some CSF drained via a spinal tap since I was having vision issues. I am so tired all the time. The medicines are many. I was taking flexril that we stoped since it was causing more pain then helping with my jaw. They cut into it during this surgery.

    This friday it will be 2 weeks since this surgery. I have a nurse, PT and OT comming to the house. There was no way I was going to go to a rehab facility, I wanted to be in my home.
    The other post here are familiar. Bits and pieces from all of them sound like what I am experencing.

    Thanks for letting me read your post and posting my story. Im sure my spelling and sentence structure is off but its the best I can do right now.

    • Just Jules says:

      Bobbie, wow, you have been through a lot of pain and suffering. I too had brain removed because it was in my sinus. Just remember you are at the beginning of this journey. Keep up the positive attitude. Look at me under 2 years and I am dealing with my thought pauses, speech pauses and blind in one eye.

      I have started competitive shooting and getting ready for my First Nation match in May of this year!

      You got this. Just give yourself time to heal. Our brains get ticked off when surgeons put their fingers where they don’t belong and cause us all of these other issues. You will get through it. By week 2 I was barley able to stay out of bed for more then a few hours. Baby steps, and I know you will make a full recovery, it just takes time. <<<ok I hated it when my father who had a stroke in 2010 and was blinded on the left vision of both eyes kept telling me I just takes time. I did not want to hear that, I wanted it NOW dang it! Well guess what dad was right it takes time to figure out our new normal and adjust to it not let it get us down.

      Stop by anytime you want to talk.

      • Bobbi says:

        I completely understand I want it now thing! I’m just short of for months I bi frontal craniotomy & still can’t figure out why I have such bad fatigue and such brain fog ( I call it Swiss cheese brain). Then I’ll have periods of rapid memory rush is that come back. I’ve been losing bits of time so an EEG Was done. DR. Says I have postoperative epilepsy…I didn’t even know that was a possibility? Going to do a 72 hour EEG (Annuity) Has anyone else said anything like this? I hope all of your feeling well thanks for your time God Bless!

      • Bobbi says:

        I completely understand I want it now thing! I’m just short of for months I bi frontal craniotomy & still can’t figure out why I have such bad fatigue and such brain fog ( I call it Swiss cheese brain). Then I’ll have periods of rapid memory rush is that come back. I’ve been losing bits of time so an EEG Was done. DR. Says I have postoperative epilepsy…I didn’t even know that was a possibility? Going to do a 72 hour EEG (Ambulatory) Has anyone else said anything like this? I hope all of your feeling well thanks for your time God Bless!

  16. Patricia A. Retherford says:

    I had a craniotomy on September 2, 2013 for a meningioma, left front frontal lobe. It became symptomatic on Sept. 1 – and I went immediately to ER because strokes always do better if treated immediately and since I was experiencing aphasia (word scramble) etc. I thought that might be a stroke. CT scan diagnosed 2 meningiomas – frontal lobe and one on the lower back of my head right side. 1 hr from University Hospital, sent there via ambulance and had surgery at 8 a.m. next day! I had a very uneventful recovery. No pain meds other than Tylenol – no physical effects or mental effects from surgery. D/C home from Neurosurgery ICU on 4th day. Now 6 months post op I find that I have about controlled the “dandruff” type of flaking – the hair or scalp on my crown, left side, feels kinda of numb or more like my hair hurts. I did have all my hair shaved and think maybe on reflection I am happier with that than trying to have longer hair and then no hair in certain areas. Older women might understand more if I say it feels like when we used to put our hair up at night on brush rollers and the discomfort from that to your head . I am off all drugs associated with surgery – antiseizure etc. My only real complaint is that I am very tired by midafternoon and the more I try to ignore that the more I realize I still have some recovery to see through. I am a 71 year old woman and am very active and thank God for the recovery I have experienced to date. Good site – was wondering about discomfort in crown of head and “dandruff” and tiredness – thanks for the answers.

    • Patricia A. Retherford says:

      clarification – the second tumor on back of right side of head – was very small and they didn’t operate on that one. They did however, did radiosurgery – radiation – in February of this year.

    • Just Jules says:

      Glad I could help, wow you had a very quick decision time for your craniotomy. Glad you are doing great. Yep I still get tired. I a, approaching my 2 year anniversary. Hair is back to a length past my shoulders now. I have had in total about 6 inches cut off in the past 2 years.

      I understand what you mean by hair pain. Now that my hair is long I put it up in a pony tail and wowie pin for Bout 4 hours after I took it down, I could not even touch my head where my scar is.

      Good luck on the recovery glad my experiences has helped you in your recover.

      • Julie Grant says:

        I had a temporol lobe lobectomy done in december 2013 it still feels funny on one side but i am religous in rubbing in bio oil for scars and today its doesnt even look like anything went on except short hair i still dont like the feel of a brush on that side its not normal yet health wise i have had a few blips just very weak and shaky legs but that was part of my seizures hope you are getting better i no it takes a while to get better but all we can do is hang on in there as it will get better

      • Just Jules says:

        You have the right attitude. Keep it up.

      • Patricia A. Retherford says:

        Just Jules, yes it was quick, just overnight. I will continue to listen to my body and rest when I need to. Crown of head feels better than even a week ago, I think it is that answer I got on line about scalp regenerating, same with dandruff like places. The scar is like a grove in my scalp that you can lay your finger in, fortunately my hair is starting to grow and it doesn’t show, just feels strange to have this big groove in my head. Thanks for the answers and the encouragement.

      • Just Jules says:

        Yes, have that same grove, except mine now has bumps on the grove. Not sure if it is scar tissue over the grove? Only bugs me (just like the plates) when I run my hand through my hair. The plates well they bug me when I wash my face. I think because I forget they are then then bam I feel them again. They feel like little bruises with a lump under the skin that just won’t ever go away.

  17. Bobbi says:

    Just got my latest MRI back Thursday, had the craniotomy to remove a tumor (knew I still had a small one w/a “dural tale) to watch that was asymptomatic. Now another has shown up…My body seems to develop random tumors when it wants! Have had removed from both hips, both wrists, & back of hand also brain!
    Told my Doc I feel like a tree, just
    keep hacking @ limbs (side issues) but never get to the
    trunk (main problem). Sometimes its hard to keep telling everyone I’m fine! Just one of those days! Sorry, hope you all are doing well!

    • Just Jules says:

      Bobby, hang in there, sooner or later they will figure it out, have faith. I understand the “tell everyone your fine” When you really feel like telling the truth that you are sick of being sick.

      Brain surgery sucks. But you are a tough and strong individual and will make it through this. Sending prayers for a complete recover and tumors to stop and go away.

  18. P.M. says:

    Today is my 2nd month post craniotomy. What a journey this has been. I’m so glad and grateful to have made it this far. Please pray for me and I’ll be praying for you ( alongh all the people I met in during my hospitalisation

  19. Anna says:

    Hi, my mum had a craniotomy (2nd Jan 2014) after she had a stroke while undergoing clipping surgery for an anyuerism. This all occurred on the left side of the brain so she is currently paralysed on the right side and is unable to speak. Does any one know if things may improve for her once she has a plate put in to replace the skull? Thanks

    • Just Jules says:

      It takes time. Yes I would suspect that she will start doing better after they have her skull back in place. My farther had a stroke, they aid that 2 years before you know the full extent of recovery. Sending prayers your way.

  20. Susan says:

    Hi everyone, I had a crainiotomy for an unruptured aneurysm in Oct ’13. Still tired, head throbbing at bedtime, trouble with words. Happy to be alive & had a wonderful surgeon. But today started having horrible sharp pains by incision on top of head. Is this normal after 6 months? Mid left temporal site. Any info appreciated! Thanks.

    • Bobbi says:

      My surgery was Nov’ 13 for tumor removal. Still Having a lot of trouble with fatigue and word recall/memory. Can’t speak to headaches as I have severe migraine always have. As far as the other, I have right sided temporal incision pain ( sometimes dull but can be sharp many times, especially during weather or if it gets bumped). I always think I’m feeling a screw through that spot! :) from my understanding it will get better it just takes quite a while… I hope this helps! Best wishes!”

      • Susan says:

        Thanks for replying! I have looked in several medical sites with no luck in finding a general timeline for recovery from headaches due to the incision. I guess all of us have to leave it up to time. Oh, well! Best to you!

      • Just Jules says:

        Best of luck to you. It gets better. Everyone is different. I never found a timeline either before my craniotomy that was the reason I started this blog. Sorry it took me a few days to respond.

        I have gone a few months with out a headache and then bam it’s back. Enough that I have lost all my energy, I have slept more in the past week then I think I have in the past month. It is annoying

      • Just Jules says:

        Spot on. I am coming up on my 2 year anniversary for my craniotomy. The plates and screws will remind you they are there at the most unusual times.

        At 1.5 years I had the worst incision pain to the point I could not touch my scalp for about 5-6 hours. All because I had a pony tail type hair do that day. Nothing seems to amaze me anymore after this surgery.

        I still have issues with the word finding but not as bad. Also I am to the point I can cover it up from others noticing.

    • Just Jules says:

      I have had this! not sure what causes this. To the point where pain was a bug concern. I tell everyone, if it is concerning you contact the doctor. Boy oh boy did my doctors have a lot of emails and phone calls from me.

  21. Donna says:

    I am 10 weeks out from my ‘frontotemporoparietal craniotomy’ due to an acute/subacute subdural hematoma. I hit my head on a kitchen cabinet the end of December and the headaches started the end of January. My doc and I thought sinuses were a problem and attacked the coughing issue, but the next day after getting antibiotics, I could keep nothing down and headache was more excruciating, so hubby took me to the ER. Once they saw me and did a CT, the neurosurgeon was there in minutes and taking me to surgery. So, they took the blood clots out, and then I developed intractable seizures, the records say. I don’t remember anything much from the day my husband took me to the ER until about 10 days later. Was put into a coma because of the seizures. We heard over and over how ‘lucky’ we were that the particular neurosurgeon was on call that evening, as he is felt to be the best in this whole region. Amazingly, I am doing really good, but there are things going on just like you stated in your story, word finding, pain and pressure with the scar, fatigue, etc. I felt like your story of post-crani symptoms almost perfectly described what I’ve been feeling. However, if I get a deep headache, I get slightly panicked because I don’t trust my body anymore to tell me when it’s in trouble. It’s a bizarre case and people seem stunned to find out all this happened because of a hard bump on the kitchen cabinet. After researching things and seeing my records, I feel more frightened about the seizure issue than the hematoma, and they have me scheduled to see an epileptologist next week. I am thankful to be alive, but I saw above where one guy kind of criticized you for posting your experiences and he was doing just great. I think there can be a little euphoria, and possibly denial, after something like this and you find you are alive. I don’t remember his story, but for me, I tend to minimize everything and want everyone to think I am some miracle… which I am, of course, LOL… Not everything presents itself in the first 2 weeks after a major surgery. There are a lot of sensations going on in my head right now and not everything feels just right, but anyway… thanks for sharing, and sorry this is so long. I am a medical transcriptionist and educator by trade and fortunately my higher functions seem to be intact. When I try to verbalize things, though, I’m just like you were… can’t find the word I need. If I’m tired, things really go to pot. It’s much harder to talk than to type for some reason. The brain is a mysterious thing. Thanks for letting me share.

    • Just Jules says:

      Woe wow woos you have really been through the wringer. Hang tight it is a joy ride but you are over the major hump.

      I have been testing my IQ since brain surgery. Before I usually ran in the high 130′s just after I was in the 80′s now I am getting in the low 120′s so there is hope. Math, spelling and punctuation skills are lacking. But that too is getting better.

      Year typing for me was easier when the words just would
      Not flow. I still had thought pauses as well as changing what I was going to say be because I could not even get close to spelling a word. Spell check even had a hard time with me there for awhile. Lol

      Never apologize for long post in here. Your story might just save someone’s life.

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