The long journey i have been on with this headache stared 1 year ago. I remember waking up after orbital decompression with a massive headache and not being able to taste anything.
My life has been changed so drastically in one year it gets me angry and ticked off at everything I have been through. A simple surgery gone wrong. Period point blank.
If I have learned anything in this past year it is:
Life should not never ever be taken for granted. If I knew then what I know now…
Family will always be there when everything else is falling apart. My family is the best. They know my speech issues, they tell me not to be embarrassed when I have a speech pause are just plane forget what I was talking about. They understand my sight issues and warn me of obstacles approaching. Now if I could just get the 2 yo nephew to just stay on my left side instead of my right side when i am in charge of him at the local kids pizza buffet and game center. that little angle is quick and can change directions on a dime, my life would be great.
Your husband/wife is not a servant. I have to remind myself. If I placed that item “there”, don’t expect that he is going to put it in its right location. Just because you are overwhelmed with your situation does not allow you to take for granted that significant other.
Everyone else’s life will continue as they know it, only yours has changed. Try not to burden them with your issues. They will keep their appointments, vacations, weddings. Because of your situation you can not attend, do or be active with them, fly etc…That is not their fault. Don’t get down on them for living their life. This is your path you are going down, they have their own to worry about.
Be persistent with your doctors if you truly believe there is an issue. My original surgeon would not listen to me that there was an issue. With symptoms not going away even though the surgery site was healed. You are the only one who knows what is right and what is wrong when there are surgical complications. Now if I can get my brain surgeons to listen to me an fix my current situation of a continued CSF leak life would be perfect.
Learn how to get along with your situation. For me that is being blind on the right side. Speech issues, reading comprehension. Not seeing the world as everyone else does. No depth perception. I live in a 3D world but only have 2D vision.
The other thing I have learned that this one surgery, has now made my medical history sheet that you fill out with a new doc, an extremely long list. To the point it is almost embarrassing to make all of those check marks for so done who is only 49.
Have a appointment with Dr B next week so that is all I have right now. Have a great weekend.